{"created":"2023-06-20T15:53:16.061455+00:00","id":7826,"links":{},"metadata":{"_buckets":{"deposit":"70ee5a51-3f68-441e-8825-93dea11df621"},"_deposit":{"created_by":28,"id":"7826","owners":[28],"pid":{"revision_id":0,"type":"depid","value":"7826"},"status":"published"},"_oai":{"id":"oai:redcross.repo.nii.ac.jp:00007826","sets":["172:173:204"]},"author_link":["14712","14709","14714","27763","27762","27764","14710","14711"],"item_10001_biblio_info_7":{"attribute_name":"書誌情報","attribute_value_mlt":[{"bibliographicIssueDates":{"bibliographicIssueDate":"2014-03-01","bibliographicIssueDateType":"Issued"},"bibliographicPageEnd":"120","bibliographicPageStart":"117","bibliographicVolumeNumber":"31","bibliographic_titles":[{"bibliographic_title":"日本赤十字社和歌山医療センター医学雑誌"},{"bibliographic_title":"Medical Journal of Japanese Red Cross Society Wakayama Medical Center","bibliographic_titleLang":"en"}]}]},"item_10001_description_5":{"attribute_name":"抄録","attribute_value_mlt":[{"subitem_description":"居住地域に血友病患者家族会がない場合、近県で参加している現状がある。○地域にはなく、作る必要性を感じ、患者家族に声をかけ始めた。結成するための知識がなかった為、医師と県難病支援センターのアドバイスを受けた。発足式で、講演会と意見交換会を行った。会終了後に、親同士が連絡先を交換しあう姿が見られ、交流の橋渡しができた。小野は、「患者会は、当事者しか分かり合えない癒しや、情報が貰える。孤立しがちな家族にとって重要である」と言っている。会員の年齢は3歳から40代と幅広く集まり、特有の心配事を、共感し話し合える仲間ができた。患者は同疾患患者との結びつきを望んでおり、患者家族会がある事で交流を持つ事ができる。今後もアドバイザーとしての参加を続けていきたい。","subitem_description_type":"Abstract"}]},"item_10001_full_name_3":{"attribute_name":"著者別名","attribute_value_mlt":[{"nameIdentifiers":[{}],"names":[{"name":"UCHINO, Yuko"}]},{"nameIdentifiers":[{}],"names":[{"name":"Takeda, Noriko"}]},{"nameIdentifiers":[{}],"names":[{"name":"Kawano, Michie"}]}]},"item_10001_publisher_8":{"attribute_name":"出版者","attribute_value_mlt":[{"subitem_publisher":"日本赤十字社和歌山医療センター"}]},"item_10001_source_id_9":{"attribute_name":"ISSN","attribute_value_mlt":[{"subitem_source_identifier":"1341-9927","subitem_source_identifier_type":"ISSN"}]},"item_10001_version_type_20":{"attribute_name":"著者版フラグ","attribute_value_mlt":[{"subitem_version_resource":"http://purl.org/coar/version/c_970fb48d4fbd8a85","subitem_version_type":"VoR"}]},"item_creator":{"attribute_name":"著者","attribute_type":"creator","attribute_value_mlt":[{"creatorNames":[{"creatorName":"内野, 祐子"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"武田, 典子"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"河野, 三知永"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"松井, 由美子"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"山﨑, 裕子"}],"nameIdentifiers":[{}]}]},"item_files":{"attribute_name":"ファイル情報","attribute_type":"file","attribute_value_mlt":[{"accessrole":"open_date","date":[{"dateType":"Available","dateValue":"2015-08-14"}],"displaytype":"simple","filename":"Vol.31 117-120p.pdf","filesize":[{"value":"288.5 kB"}],"format":"application/pdf","licensetype":"license_note","mimetype":"application/pdf","url":{"label":"Wakayama31_17","url":"https://redcross.repo.nii.ac.jp/record/7826/files/Vol.31 117-120p.pdf"},"version_id":"b95f9932-8b9c-4f6e-b219-3a0978eb7fde"}]},"item_keyword":{"attribute_name":"キーワード","attribute_value_mlt":[{"subitem_subject":"血友病","subitem_subject_scheme":"Other"},{"subitem_subject":"患者家族会","subitem_subject_scheme":"Other"},{"subitem_subject":"小児","subitem_subject_scheme":"Other"},{"subitem_subject":"hemophilia","subitem_subject_language":"en","subitem_subject_scheme":"Other"},{"subitem_subject":"association","subitem_subject_language":"en","subitem_subject_scheme":"Other"},{"subitem_subject":"Pediatrics","subitem_subject_language":"en","subitem_subject_scheme":"Other"}]},"item_language":{"attribute_name":"言語","attribute_value_mlt":[{"subitem_language":"jpn"}]},"item_resource_type":{"attribute_name":"資源タイプ","attribute_value_mlt":[{"resourcetype":"journal article","resourceuri":"http://purl.org/coar/resource_type/c_6501"}]},"item_title":"ヘモフィリア友の会を結成して：患者にとって患者家族会とは","item_titles":{"attribute_name":"タイトル","attribute_value_mlt":[{"subitem_title":"ヘモフィリア友の会を結成して：患者にとって患者家族会とは"},{"subitem_title":"Organizing the hemophilia family association : What does it mean for the patient's family","subitem_title_language":"en"}]},"item_type_id":"10001","owner":"28","path":["204"],"pubdate":{"attribute_name":"公開日","attribute_value":"2015-08-14"},"publish_date":"2015-08-14","publish_status":"0","recid":"7826","relation_version_is_last":true,"title":["ヘモフィリア友の会を結成して：患者にとって患者家族会とは"],"weko_creator_id":"28","weko_shared_id":-1},"updated":"2023-06-20T19:31:49.041870+00:00"}